A course on the potential misuse of genomic information and the legal protection in place for individuals and groups.
The major advancements in genetic science have led to our ability to draw enormous information from individuals’ genetics data. Coupled with global genetic data sharing and processing, this comes with enormous benefits but also potential misuses such as discrimination for individuals and groups. In the genomic era we currently live in, learning about potential misuses of genetic information, such as discrimination, and about legal protection in place, is crucial for organisations and individuals.
The course director, Fatos Selita, co-ordinates two Working Groups on Legal, Ethical and Societal Implications of Genetic Findings (LESIG), both in the UK and the Russian Federation.
In this short course, you will learn about:
- The extent of information we can draw from an individual’s genetics data
- The global genomic research platforms and data sharing – implications for discrimination.
- How can information extracted from genetic data be used to discriminate; and areas of potential discrimination.
- Merging of genetic data with big data /person data and medical data – implications
- Potential discrimination risks for individuals and groups (e.g. race, ethnic etc.)
- Laws regulation genetics data processing (e.g. UK Data Protection Act, General Data Protection Regulation (GDPR), Genetic Information Non-discrimination Act (USA)
- Laws regulating genetic discrimination (e.g. Discrimination laws UK; General Data Protection Regulation (GDPR), Genetic Information Non-discrimination Act (USA), Genetic non-discrimination Act (Canada)).
- Commercialisation of genetic research and discrimination on access to benefits
- Impact of inequality (beyond poverty) on peoples’ genes (heritability) - from the authors of Genes and Gini: what inequality means for heritability.
The course is a combination of law, genetics science and ethics. It is designed to equip those taking the course with knowledge on:
- Minimising genetic discrimination, including through knowing about the origin of risks, legal protection in place, and steps that can be taken (e.g. by individuals, research institutions, police administration, education administration and lawyers)
- Protecting from potential discrimination
- Promoting positive use of genomic science
- Promoting Ethical and legal use of genomic findings, data, and information.
The running of this course is subsidised by The Accessible Genetics Consortium (TAGC).
- 10% if you are taking two courses in consecutive weeks
- 20% UK students
- 25% UK Law & Society Association (UKLSA) Members
- If five people register from the same institution for the same intake, the fifth place is free
- Goldsmiths students, staff and alumni - email us for current discounts
For information on our upcoming short courses please sign up to our mailing list.
Goldsmiths, University of London